All about this strange disease described as one of the most baffling and rare conditions of this generation, this is my story. Through all the ups and downs of this disease I've maintained a stellar attitude envied by many. Even though this condition has plagued me my entire life it has yet to lick me. Now that I've been officially diagnosed I've managed to kick its pukey arse! This is how I did it. This is how I continue to do it.